Are any of you salicylate sensitive?

More
9 years 1 month ago #35214 by tonic
We are working through an elimination diet for my son as I suspect he is sensitive to salicylates. I have read a bit about it online but was wondering if anyone here has any experience?

I am going to see if any allergy specialists locally can give support (though I realise it is not an allergy, they seem to be the people that deal with it). His symptoms are more behavioural than physical but there has been a real difference in the past couple of weeks... I feel like I have my little boy back!

Please Log in or Create an account to join the conversation.

More
9 years 4 weeks ago #461870 by Kilmoon
Yep, all my family are to some degree, ie for one sister and one of my brothers I think if they ingest they die, for the rest of us its a matter of how much rash/hives, vomiting, diarrhea, bloating, and swelling we want to put up with. :D .

You can check through your doctor (blood test from memory - but it was done when I was a kid, so I was most likely focused more on the large needle than as to what was being tested!)...or let him have an aspirin then stand back and watch the fun :D . You do eventually grow out of being so sensitive to it, but we stay away from aspirin/dispirin as a matter of course and mention it when asked by pharmacist/doc etc. Don't think any of my sibling's kids are allergic to it.

Please Log in or Create an account to join the conversation.

More
9 years 4 weeks ago #461875 by tonic
wow, that must be tough. I think my boy is not too sensitive but it will be interesting to see if it is affecting his behaviour. He can be a very tough kid to deal with, as was one of my brothers, one of my nephews and at least one of my cousins.... which had me wondering if it was passed on through families. It certainly seems like it is with your family.

I would be very unsure of giving him an aspirin! It seems to affect his behaviour for at least a week after he has had a reasonable level of salicylates, and during that time I get close to spinning out emotionally. He goes from a strongwilled but sensible and caring and accomplished young lad to a raging, disrespectful, unable to cope with small tasks and arguing loudly with everything I say (even if not talking to him) little monster. I love him to bits but in this state he can push me to places I did not know existed in me... I guess thats is a gift of showing me new parts of myself.
I will look into the testing, everything I have seen online said the only way to test was by eliminating it then adding a bit to see if there was a reaction. It must be very hard for people with a strong reaction to get all the necessary nutrition as it is in so many fresh foods.

Thanks Kilmoon, sometimes it does me good just to know someone else is dealing with a similar issue!

Please Log in or Create an account to join the conversation.

More
8 years 2 months ago #485509 by memphis101

tonic;463634 wrote: We are working through an elimination diet for my son as I suspect he is sensitive to salicylates. I have read a bit about it online but was wondering if anyone here has any experience?

I am going to see if any allergy specialists locally can give support (though I realise it is not an allergy, they seem to be the people that deal with it). His symptoms are more behavioural than physical but there has been a real difference in the past couple of weeks... I feel like I have my little boy back!

Hi Tonic, I am a new member and noticed your post re salicylate free diet. I have been a fibromyalgia sufferer for a very long time and there is a salicylate-free diet that is recommended for sufferers like myself. there is a website dedicated to it mostly focusing on the diet and a particular protocol we follow for a treatment plan for our particular issues. They may have some information on the different salicylate-free products and foods available. Just a thought. P.S. You don't know of any good grazing for a horse in Wairoa road or around this area in Tauranga? :-)

Please Log in or Create an account to join the conversation.

More
8 years 2 months ago #485564 by tonic
Hi and welcome! We found that my boy has other issues, likely Aspergers and other compounding problems, however, he did do better on a low salicylate diet. I suspect it was the nightshades that were the culprits and have mostly removed them. Gluten and dairy are often a problem for those on the Autism Spectrum so we have reduced them but really need to finish the job and remove them totally... I am seriously considering a milking goat...

I do not know of anywhere definitely offering grazing, but there is a horse place on Wairoa Road that used to allow grazers on the land they leased which is up near McGregors vege shop on the main road. Also, there are people on Oliver Rd that have horses and I there are often 2 or 3 girls riding there, it may be worth contacting them to check. They have a sign for a business outside the gate so you could get a phone number if you don't want to stop in first...

Are you near Wairoa?

Please Log in or Create an account to join the conversation.

More
8 years 2 months ago #485568 by jeannielea
My 11 year old grandson was diagnosed last year and since then he has been on a fairly strict diet but is allowed treats at times. It has improved his behaviour hugely and he himself knows the difference and prefers to be calm. He was diagnosed by a naturopath but my daughter has looked at lots of relevant sites on the net - especially NZ sites - and found them really helpful with lists of foods and how high up the level they come, plus actual types of particular fruits such as 'Granny Smith' apples.
Just as an aside, Robert's behaviour is also improved if he is in a routine he knows or if something new is explained beforehand - i.e. if he's in his comfort zone -and I know this is also true for autism spectrum people too.

Please Log in or Create an account to join the conversation.

More
8 years 2 months ago #485582 by tonic
Explosiveness is our biggest difficulty. He hates it, too, and is willing to give up favourite foods and try out new 'systems' to encourage certain things and discourage others. It like he is keen to try anything to make his life calmer, but so far we are struggling to find anything that actually works. On one hand we are regularly told how polite and well behaved and articulate etc he is, and on the other hand he has huge melt downs and doesn't seem to be able to fully grasp consequences for actions. (Those of you who remember BeeDee, she said he was the most delightful, well mannered child she had met in a long time). And we are people who have made it clear from day dot what is and isn't acceptable behaviour, so to have him at 8 still not understanding and not being able to control his anger is worrying. I have a whole pile of notes and remarks form people on how my parenting is good and loving and strong so we have been trying to get some professional help, someone to give us an idea on what is actually going on in his lovely little head.

Turns out it takes many months and tears and reports from various people and being sent back to start the process again just when you think you've made it to the right door before you can get in...last year I felt like I was kicking in doors hoping to find the right one. However, we have been accepted at Child and Adolescent Mental Health and they are planning to get a clear picture of what is going on for him so we can help him find a way to fit in this world that clearly doesn't see things the same way he does. I don't want him to lose his wonderful differences, but he has to be able to make his own way eventually and that involves adjusting to fit with other people, whether you like it or not...

Thats my main goal, to prepare him for life out there on his own....that and making through the next day without totally losing my temper when i know he is struggling as much as I am.

I know there are people out there who understand and have great personal experience that they can share, and that is welcomed. I also know from experience that there are many parents with 'normal' kids who think advise on better punishments will fix things...not so welcomed. I remember being told something that has turned out to be so true - that I will deal with more parenting challenges in a week than most parents do in a year! At first I thought it was an exaggeration, but looking at other parents and their kids I realise now that my other child really isn't an angel sent here to balance out her brother, she is actually like most other kids....that was a real eye opener.

Anyway, I guess I needed an outlet today! I am grateful to you all for providing a place where I can spill occasionally and not feel like a freak...

Please Log in or Create an account to join the conversation.

Time to create page: 0.163 seconds