Just been diagnosed with type 1 diabetes

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9 years 3 months ago #34562 by kai
I wasn't surprised at the diagnosis of diabetes, but shocked about it being type 1.
Still trying to get my head round about daily injections

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9 years 3 months ago #455156 by Stikkibeek
That's not very welcome that's for sure. Diabetes is on the rise in NZ especially in woman, but it's mainly type 2. It will be a huge learning curve and the biggest impact will be on giving up all the tasty things in life that you may have been used to. Some good information out there however, and one good thing is the free doctor visits every three months.
My mother had type 2, so I know a bit about the ins and outs of it all. Most of all, look after your feet. I know you have had problems with those before, so diabetes may be an added complication

Did you know, that what you thought I said, was not what I meant :S

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9 years 3 months ago #455157 by ZummersetGirl
That's a bit of a bugger Kai. More people are being diagnosed with Type 1 even though they don't quite fit the younger onset criteria - not that you aren't young of course :D how long have you suspected ?

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9 years 3 months ago #455161 by kai

Stikkibeek;456244 wrote: That's not very welcome that's for sure. Diabetes is on the rise in NZ especially in woman, but it's mainly type 2. It will be a huge learning curve and the biggest impact will be on giving up all the tasty things in life that you may have been used to.

The diabetic nurse specialist has said, there is no such thing as a diabetic diet, just stay away from the obvious lollies (no problem there don't have a sweet tooth), sugared drinks (no problem there I either drink water or sugar free and have never had sugar in tea or coffee). The only thing that I will miss is orange juice.
I have known I was at risk for years (family history), and have been tested many times. With hindsight I can see several things in the past couple of years that have been pointers. Ironically I thought the 12kg weight loss was a good thing rather than a symptom.

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9 years 3 months ago #455162 by DiDi
Kai - I imagine this a a hell of a shock given that Diabetes 1 has historically been considered a youth onset. I had a look on About.com and that was interesting given the frustrations people have had to deal with since getting this diagnosis and deal with it.

Can I ask, for others on here if you can, without needing to put up anything identifying and personal - how did this happen in terms of suspecting something was wrong - who diagnosed it etc.

I have a friend who has gestational diabetes and she is having to inject herself and the Doctors have basically said that this time (second pregnancy with Diabetes only no problem previously when bub was born) - this time - not such a positive outlook.

There is such a massive focus on Diabetes in NZ Medical care - would you consider getting a second opinion? Have you an Endocrinologist? Not saying you should but I know I would so just throwing that out as questions.

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9 years 3 months ago #455163 by kai
I have been referred to Palmy hospital to the Endocrinologist there, the GP also called him to advise on course of action whilst I was there (you know you have something to worry about if a consultant is rung up during a consultation).
PCOS is linked with an endocrine problem. This is now commonly known by GPs, but 20 years ago it was not. Because of this I knew many signs and symptoms ( I don't want to go into details) ultimately it was a recommendation by my podiatrist to get levels checked that prompted me to go to the docs.

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9 years 3 months ago #455166 by DiDi
Thanks for that kai. I did have a reason for asking and can tell from your answer that you are being well cared for by the system.

I have had the most frustrating past 4 - 5 years being told I am Pre Diabetic as in Type 2 and in the end after numerous lolly water test that they can't explain (I was hypoglycemic) when younger, it would seem that their tests don't explain my "random" results that testing causes. I have just spat the dummy and refused any further tests - as none show I am a Diabetic - my comment about the focus on Diabetes.

My family history was that one Uncle of eight children had Diabetes (and I recall as a child never seeing him without a bag of lollies) to having 35 cousins and only one (until my brother was diagnosed) having Type 2 Diabetes.

I don't even accept that my brother has it - but won't get personal - so just explaining why I was asking the questions. Glad to hear you have an Endocrinologist involved and not just your GP.

Onwards and upwards Kai - at least you know what you are dealing with and have the support in place - but not denying it is a new journey for you. Hugs.

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9 years 3 months ago #455167 by kai
Didi if you have any further questions I will happily answer by pm

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9 years 3 months ago #455173 by shad297
My son's girlfriend was diagnosed with Type 1 at age 13. She wears a permanent pump so doesn't have to inject and eats the most atrocious diet, so much sugar which she craves.
Hers came on after a viral infection and feeling the great thirst.

Good luck kai with your future health and treatment.

Husband, two teenagers, Stanley & Jed the greyhounds, one quail (Hawkefrost), one budgie (Chaos) small productive surburban section.

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9 years 3 months ago #455174 by Hawkspur
I have several acquaintances diagnosed in the last year with Type 1. Varying ages, from 20 -60. Some have really struggled to get it under control, having to eat a very strict diet.
Good luck and I hope it goes well for you.

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9 years 3 months ago #455440 by LongRidge
Welcome to the club that no-one wants to belong to ..... :-). I've had T1 for 56 years .... well, nearer to 56 1/2 years now, but who's counting .... FYI, a T1 in Nelson was diagnosed when he was 96 years old a year or so ago.
Just ask if you want some of my ideas, either on here or as a PM.

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9 years 2 months ago #457993 by germanshepherd
Replied by germanshepherd on topic Just been diagnosed with type 1 diabetes
I am type 2 and the best thing i did was get off that sugar poison.I used to go thru a big bag of sugar in about a month.Now that same amount would last about a year or more.One cup of sugar now lasts me about two weeks as i only use about half a teaspoon in coffee.I don't use it in my tea at all.
I am having trouble with my legs and feet and have also lost a lot of muscle tone.I can't do a lot of the things i used to like climbing up on ladders or chairs and can't walk far
I see lots of advertising on tv about the amount of sugar in coke and other similar drinks,a good thing and i hope it is affecting the sale of such products.The amount of crap that parents are buying their children is a concern and also what the children are buying at school.
I eat a lot of fruit (natural sugar). My diet has also changed for the good.I don't eat any junk food at all

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9 years 2 months ago #458002 by Organix
There is no reason for 'diabetic diets' to be boring. Check out Simply Raw and Essential Cuisine from our DVD selection. Simply Raw in particular is aimed at reversing the effects of diabetes and is a very inspiring diary of 6 diabetics who embark on a diet led journey to do so.

Susan (Chef Teton) Campbell who produced Essential Cuisine has also advised us that she has recently completed a new DVD set on 'Healing Foods' which she plans to release in the next month or two. We're looking forward to adding this to our selection.

Contact us via our website if you require further info on either DVD.

Harm Less Solutions.co.nz
NZ & AU distributor of Eco Wood Treatment stains and Bambu Dru bamboo fabrics and clothing

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9 years 2 months ago #458012 by germanshepherd
Replied by germanshepherd on topic Just been diagnosed with type 1 diabetes
Of course there is no reason for diabetic diets to be boring.I have just cut out the sweet stuff like ice cream and i also eat very little jam as it is too sweet.The only other slightly sweet thing i use is that lovely lime marmalade

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9 years 2 months ago #458027 by kai

germanshepherd;459351 wrote: I am type 2 and the best thing i did was get off that sugar poison.

Apparently I now have both type 1 and type 2. I am sure the type one came about after an attack of pancreatitis, the type 2 I always knew I was at risk for.
Oddly enough sugar has never been an issue for me, never had it in tea or coffee, don't particularly like chocolate and very rarely would ever eat a desert. The only time I suddenly got a sweet tooth was just before my diagnosis when the body was not metabolising sugar at all.

I saw the dietician and the only recommendation was cut down on the meat a bit and use trim milk (which I ignore as I don't have it in tea or coffee, or cereal and usually only buy when we have guests)

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