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15 years 8 months ago #206865 by chooky
Replied by chooky on topic a BIG Thankyou!
So sorry to hear you are going through all this hassle as well as the unimaginable stress of having a sick hubby . Have you considered contacting the Cancer Society and seeing if they can lobby on your behalf ? They do have a lot of welfare services .
All the best .

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15 years 8 months ago #206882 by Simkin
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Excellent idea - cancer society. I found the best way of finding out things is talking to people who've made a similar experience.

Generally WINZ doesn't go out of their way to offer assistance. You have to know what you're entitled to and specifically ask for it.

Suzanne, I know that you're working your butt off to make ends meet and as your hubby is sick it's difficult to go around to get what you are entitled to - and you definitely have some entitlement .. see pm

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15 years 7 months ago #207130 by Hestia
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I have been in contact with several people that are involved with longterm sick people in nz. I just get to hear horror story after horror story of people having to leave everything they have when they loose one income.
ACT has sent out something in the mail of how they want it to be. I am not in to politic, read their send out! I have not read it myself yet but got a few senetnces read for me yesterday.
Next week I am to re-apply to travel allowance.

I can so not understand that the National Travel assistance is two forms, one sent from the hopsital and signed by them and one I fill in and they can decline even before I have sent my part in!
They declined the register application with just his name on and no other info or claim, what on earth did they decline??

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15 years 7 months ago #207166 by Birman Babe
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Can you not get a legal aid solicitor/person to look at these papers. Should be someone in Paeroa you could call on for assistance??

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15 years 7 months ago #207203 by Hestia
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would probably cost same to get a solicitor as what I might be able to squeeze out of it,,I am to be at the hospital 4-5 days next weeks so I will chase for an answer when there,,answer to why say no even before I sent in what I want,, a bit strange,,

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15 years 7 months ago #207206 by Pumpkingirl
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I found when dealing with bureacracy that often they make assumptions, that then lead to wrong decisions being taken.

So the form being returned to you with "declined" on it could have been a wrong decision based on an incorrect assumption. I suspect you'll find you will have to be persistent and not take the first "no" that comes back - or even the second, or the third.

I think approaching the Cancer Society for assistance is a very good idea. When my cousin was sick, they were wonderful, especially with moral support for us as the main caregivers.

Suzanne, the other thing that might be helpful (if you haven't already) is to tell the hospital where your hubby is getting treatment that you are having issues and struggles, and would the local district nurse please assist you. The local district nurse will have a really good idea of what help you are entitled to, and would be another good advocate for you.

Our district nurse did heaps, from suggesting different sheets so that my cousin wouldn't have so many problems from dry skin (as she spent a lot of time in bed), right through to her financial entitlements etc.

When my cousin got back pain from being in bed for long periods of time, she arranged a hospital bed, that could be raised up and down etc automatically. This was all free and all arranged for us. It also made it much easier for her to get in and out of bed too.

The other thing we discovered was hospice. I always thought that it was only people who are dying could get help from them, but that's not the case. If you need help, their nurses and Drs are also very good. Our hospice nurse did a tag-team with the district nurse, every day one or other would arrive to check on things.

I'm not saying you need the intensive kind of help that we did, but you do have entitlements and these are the women (sorry, it seems to be women) who can really help you with practical stuff and "big picture" stuff too.

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15 years 7 months ago #207209 by Pumpkingirl
Replied by Pumpkingirl on topic a BIG Thankyou!
From the Cancer Society website ( www.cancernz.org.nz )

CANCER-ASSOCIATED GRANTS FOR INDIVIDUALS
The Cancer Society provides small grants to assist individuals and family when transport costs, household expenses, special equipment, accommodation for treatment away from home, counselling services and other essential needs are causing financial hardship. All grant applications are submitted to local divisions. The applications are reviewed individually and grant monies offered are supplementary to services provided by government agencies.

In your area Suzanne, you need to ring Coral Day on (07) 868 7956 in Thames, to see if you are eligible. There are also transport shuttles that might be able to help you and/or hubby get to Hamilton hospital and back - Coral can help with that too.

From the Waikato Cancer Society website...

If you are newly diagnosed and/or receiving treatment for cancer you can receive regular support in your home from a Cancer Society liaison nurse. The nurse will:
  • Provide you with information about managing physical symptoms
  • Offer emotional support
  • Liaise with other service providers on your behalf

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15 years 7 months ago #207224 by The Kats Place
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I've just been to visit a friend who has just had surgery for bowel cancer and she was telling me that someone from the cancer society came out to visit her at home and basically said - 'how can we help'. My friend had paid to have her scans privately as she faced such a wait in the system and she was really really poorly. The cancer society even reimbursed her all that money as well!
I wasn't aware they were so helpful. I will be making sure I donate to their vairious fund raisers in future.

kats
Live your life in such a way that it will be easy for people to say nice things at your funeral [;)]

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15 years 7 months ago #207247 by Hestia
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you won't frigging believe this.without talking about where I work.one support person only in this area.Work in same building as I do, floor under neath me, exactly under where I sit!!!(will see this person next week)

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15 years 7 months ago #207249 by reggit
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It's a small world [;)] hope that they can help in some way.

Take a break...while I take care of your home, your block, your pets, your stock! [;)] PM me...

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15 years 7 months ago #207256 by Pumpkingirl
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Suzanne;181033 wrote: you won't frigging believe this.without talking about where I work.one support person only in this area.Work in same building as I do, floor under neath me, exactly under where I sit!!!(will see this person next week)


Wow, that's fantastic! :D

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15 years 7 months ago #207262 by gemini kiwi
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I'm dissappointed for you having gone through all this stress, without some support, surely someone along the way has slipped up getting you more help and support through the Cancer society. Your local GP should have put you in contact or set the ball rolling on this one.
Take care,
GK

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15 years 7 months ago #207369 by Inger
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I'm so glad you've finally found a support person to help you through this maze Suzanne. The petrol vouchers seemed like such a drop in the bucket compared to what you and your Other Half have had to go through, but we hoped it would let you know that we were thinking of you, even though most of us can't do anything to help the two of you in any practical way in your day-to-day lives. Which is why I'm very pleased to learn that you are finally getting the advice that you should have had started getting last Christmas when all this started.

Thank goodness that there are people on this forum who know which direction to point you to, in order to find help. I do hope that life will get a little easier for you to cope with now.

Our thoughts will continue to be with you both in the coming months. Look after yourself.

45 hectares between Whangarei and Paparoa. Registered Dexter cattle, Wiltshire sheep - black, white & pied.
New Hampshire Red poultry & Dorking poultry. Pilgrim Geese, Appleyard Ducks.
A cat called Pusscat and still looking for another heading dog.

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15 years 7 months ago #207417 by Birman Babe
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Well there you go Suz, what a small world it is huh?
I am sure this person will get you on the right track and be a great support to you & M.

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15 years 7 months ago #208394 by Hestia
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OK,here we go,If you have a private insuerance for surgery and get m-o-s-t of the costs to see specialists and the surgery paid, not all of the costs.(your surgery is paid by you instead of by public hospital so you stand the cost and not the public health system)then the travel allowance is NOT for you since they think that can you afford to have a insurence then you can also afford to pay your travel!if you ern more than 28k a year you are not entitled to either community card or support.Even if your costs would be so huge so it eats up so you end up with much less than 28k a year you are NOT entitled to any help since you did earn more than 28k from the beginning.No you are not entitled to anything at all.Guys get private insurences for loss of income even though you can't afford it!!Read ACT's paper they have sent out, it shows the difference of how it is to be sick in NZ compared to other countries in the world.Then visit equity for illness web site and sign your support!Next time it could be any of you guys sitting in this and I do not wish any of you to end up in this!!!

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